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11_caregiving.json



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{
  "slug": "uvilo360_11_caregiving_004",
  "group": "uvilo360",
  "handle": "11_caregiving",
  "version": 4,
  "date": "2026-02-12",
  "name": "Caregiving (Eldercare & Disability Care)",
  "icon": "hands-holding-circle",
  "image": "v1762648951/Illustrations/Ekaterina/legacy_domain",
  "description": "**Caregiving** addresses the demands of caring for aging parents, disabled family members, or other dependents outside of child-rearing. This domain covers caregiver burnout, navigating medical and legal systems, managing care logistics, preserving the caregiver’s own identity and wellbeing, and finding support—recognizing that this often invisible labor profoundly shapes one’s health, finances, and relationships.",
  "instructions": "Caregiving is one of the most consuming and least visible roles a person can hold. This quiz doesn’t ask you to perform gratitude or minimize what it costs you.\n\nAnswer honestly about your situation—the logistics, the emotional weight, the support you do or don’t have, and how caregiving is shaping your life. There are no wrong answers, only honest ones.",
  "analysisBotHandle": "analyze-life-domain-quiz",
  "sections": [
    {
      "name": "Caregiving Landscape",
      "handle": "caregiving_landscape",
      "questions": [
        {
          "handle": "primary_caregiver_role",
          "type": "boolean",
          "question": "Are you the primary caregiver for the person or people you care for?",
          "maxScore": 7,
          "weight": 1,
          "answers": [
            {
              "label": "Yes, I am the primary caregiver",
              "value": "Y",
              "score": 1
            },
            {
              "label": "No, I share caregiving responsibilities",
              "value": "N",
              "score": 7
            }
          ]
        },
        {
          "handle": "type_of_care_recipient",
          "type": "multiple_choice",
          "question": "Which best describes the person or people you care for?",
          "maxScore": 10,
          "weight": 1,
          "answers": [
            {
              "label": "An aging parent or relative with mild support needs",
              "value": "mild",
              "score": 10
            },
            {
              "label": "An aging parent or relative with moderate support needs",
              "value": "moderate_aging",
              "score": 7
            },
            {
              "label": "A family member with a chronic illness or disability",
              "value": "chronic_disability",
              "score": 5
            },
            {
              "label": "Someone requiring intensive daily care (advanced dementia, severe disability, etc.)",
              "value": "intensive",
              "score": 2
            }
          ]
        },
        {
          "handle": "manageable_caregiving_load",
          "type": "scale",
          "question": "How manageable does your overall caregiving workload feel right now?",
          "maxScore": 10,
          "weight": 3,
          "answers": [
            {
              "label": "Completely unmanageable",
              "value": "0",
              "score": 0
            },
            {
              "label": "Very manageable",
              "value": "10",
              "score": 10
            }
          ]
        },
        {
          "handle": "describe_caregiving_situation",
          "type": "freeform",
          "question": "Please describe your caregiving situation—who you care for, their primary needs, and how long you have been in this role.",
          "autoFill": "",
          "maxScore": 10,
          "weight": 2
        }
      ]
    },
    {
      "name": "Care Logistics & Medical Navigation",
      "handle": "care_logistics_medical",
      "questions": [
        {
          "handle": "confidence_navigating_medical",
          "type": "scale",
          "question": "How confident are you navigating the medical system on behalf of the person you care for (appointments, insurance, prescriptions, specialists)?",
          "maxScore": 10,
          "weight": 3,
          "answers": [
            {
              "label": "Not at all confident",
              "value": "0",
              "score": 0
            },
            {
              "label": "Extremely confident",
              "value": "10",
              "score": 10
            }
          ]
        },
        {
          "handle": "have_documented_care_plan",
          "type": "boolean",
          "question": "Do you have a documented care plan that outlines the daily, medical, and emergency needs of the person you care for?",
          "maxScore": 7,
          "weight": 2,
          "answers": [
            {
              "label": "Yes, I have a documented plan",
              "value": "Y",
              "score": 7
            },
            {
              "label": "No, I do not have a documented plan",
              "value": "N",
              "score": 1
            }
          ]
        },
        {
          "handle": "confident_legal_financial_care",
          "type": "scale",
          "question": "How confident are you that the legal and financial arrangements for your care recipient are in order (power of attorney, advance directives, benefits)?",
          "maxScore": 10,
          "weight": 2,
          "answers": [
            {
              "label": "Not at all confident",
              "value": "0",
              "score": 0
            },
            {
              "label": "Extremely confident",
              "value": "10",
              "score": 10
            }
          ]
        },
        {
          "handle": "organized_care_schedules",
          "type": "multiple_choice",
          "question": "How organized are the care schedules, medication tracking, and appointments for the person you care for?",
          "maxScore": 10,
          "weight": 2,
          "answers": [
            {
              "label": "Highly organized with systems and reminders in place",
              "value": "highly",
              "score": 10
            },
            {
              "label": "Reasonably organized, though I occasionally miss things",
              "value": "reasonable",
              "score": 7
            },
            {
              "label": "Loosely organized, I rely mostly on memory",
              "value": "loose",
              "score": 4
            },
            {
              "label": "Disorganized, things fall through the cracks regularly",
              "value": "disorganized",
              "score": 1
            }
          ]
        },
        {
          "handle": "describe_logistics_challenges",
          "type": "freeform",
          "question": "What are the biggest logistical or medical navigation challenges you face as a caregiver?",
          "maxScore": 10,
          "weight": 2
        }
      ]
    },
    {
      "name": "Emotional Wellbeing & Burnout",
      "handle": "emotional_wellbeing_burnout",
      "questions": [
        {
          "handle": "frequency_caregiver_burnout",
          "type": "scale",
          "question": "How often do you feel emotionally exhausted or burned out from caregiving?",
          "maxScore": 10,
          "weight": 4,
          "answers": [
            {
              "label": "Constantly burned out",
              "value": "10",
              "score": 0
            },
            {
              "label": "Rarely or never",
              "value": "0",
              "score": 10
            }
          ]
        },
        {
          "handle": "frequency_caregiver_resentment",
          "type": "scale",
          "question": "How often do you feel resentment or frustration about your caregiving responsibilities?",
          "maxScore": 10,
          "weight": 3,
          "answers": [
            {
              "label": "Very frequently",
              "value": "10",
              "score": 0
            },
            {
              "label": "Rarely or never",
              "value": "0",
              "score": 10
            }
          ]
        },
        {
          "handle": "caregiving_impact_own_health",
          "type": "multiple_choice",
          "question": "How has caregiving affected your own physical or mental health?",
          "maxScore": 10,
          "weight": 3,
          "answers": [
            {
              "label": "My health has not been negatively affected",
              "value": "none",
              "score": 10
            },
            {
              "label": "Minor effects (occasional fatigue, missed appointments)",
              "value": "minor",
              "score": 7
            },
            {
              "label": "Moderate effects (chronic stress, weight changes, sleep disruption)",
              "value": "moderate",
              "score": 4
            },
            {
              "label": "Significant effects (serious health decline, depression, physical pain)",
              "value": "significant",
              "score": 1
            }
          ]
        },
        {
          "handle": "guilt_taking_time_for_self",
          "type": "scale",
          "question": "How much guilt do you feel when you take time away from caregiving for yourself?",
          "maxScore": 10,
          "weight": 2,
          "answers": [
            {
              "label": "Overwhelming guilt",
              "value": "10",
              "score": 0
            },
            {
              "label": "No guilt at all",
              "value": "0",
              "score": 10
            }
          ]
        },
        {
          "handle": "able_to_grieve_losses",
          "type": "scale",
          "question": "How well are you able to process the grief and losses that come with watching someone’s health or abilities decline?",
          "maxScore": 10,
          "weight": 3,
          "answers": [
            {
              "label": "Not at all",
              "value": "0",
              "score": 0
            },
            {
              "label": "Very well",
              "value": "10",
              "score": 10
            }
          ]
        },
        {
          "handle": "describe_emotional_challenges",
          "type": "freeform",
          "question": "What are the biggest emotional challenges you face as a caregiver?",
          "maxScore": 10,
          "weight": 3
        }
      ]
    },
    {
      "name": "Support Systems & Respite",
      "handle": "support_systems_respite",
      "questions": [
        {
          "handle": "have_caregiver_support_network",
          "type": "boolean",
          "question": "Do you have a reliable support network you can turn to for help with caregiving tasks?",
          "maxScore": 7,
          "weight": 3,
          "answers": [
            {
              "label": "Yes, I have reliable support",
              "value": "Y",
              "score": 7
            },
            {
              "label": "No, I am mostly on my own",
              "value": "N",
              "score": 1
            }
          ]
        },
        {
          "handle": "access_to_respite_care",
          "type": "scale",
          "question": "How much access do you have to respite care—someone who can step in so you can take a meaningful break?",
          "maxScore": 10,
          "weight": 3,
          "answers": [
            {
              "label": "No access at all",
              "value": "0",
              "score": 0
            },
            {
              "label": "Excellent access whenever I need it",
              "value": "10",
              "score": 10
            }
          ]
        },
        {
          "handle": "frequency_meaningful_breaks",
          "type": "multiple_choice",
          "question": "How often do you get a meaningful break from caregiving (at least several hours of uninterrupted personal time)?",
          "maxScore": 10,
          "weight": 3,
          "answers": [
            {
              "label": "Multiple times per week",
              "value": "frequent",
              "score": 10
            },
            {
              "label": "About once a week",
              "value": "weekly",
              "score": 7
            },
            {
              "label": "A few times a month",
              "value": "monthly",
              "score": 4
            },
            {
              "label": "Rarely or never",
              "value": "rarely",
              "score": 1
            }
          ]
        },
        {
          "handle": "aware_community_resources",
          "type": "boolean",
          "question": "Are you aware of community resources available to caregivers (support groups, respite programs, government benefits)?",
          "maxScore": 7,
          "weight": 2,
          "answers": [
            {
              "label": "Yes, I am aware of available resources",
              "value": "Y",
              "score": 7
            },
            {
              "label": "No, I am not sure what is available",
              "value": "N",
              "score": 1
            }
          ]
        },
        {
          "handle": "describe_caregiver_support",
          "type": "freeform",
          "question": "Describe the support systems you currently rely on for caregiving, and any gaps you wish were filled.",
          "maxScore": 10,
          "weight": 2
        }
      ]
    },
    {
      "name": "Family Dynamics & Obligations",
      "handle": "family_dynamics_obligations",
      "questions": [
        {
          "handle": "fairness_care_distribution",
          "type": "scale",
          "question": "How fairly are caregiving responsibilities distributed among your family members?",
          "maxScore": 10,
          "weight": 3,
          "answers": [
            {
              "label": "Entirely on me, very unfair",
              "value": "0",
              "score": 0
            },
            {
              "label": "Very fairly distributed",
              "value": "10",
              "score": 10
            }
          ]
        },
        {
          "handle": "family_conflict_about_care",
          "type": "multiple_choice",
          "question": "How much conflict exists in your family around caregiving decisions and responsibilities?",
          "maxScore": 10,
          "weight": 2,
          "answers": [
            {
              "label": "Little to no conflict",
              "value": "none",
              "score": 10
            },
            {
              "label": "Occasional disagreements that get resolved",
              "value": "occasional",
              "score": 7
            },
            {
              "label": "Frequent tension that rarely gets resolved",
              "value": "frequent",
              "score": 3
            },
            {
              "label": "Severe, ongoing conflict",
              "value": "severe",
              "score": 1
            }
          ]
        },
        {
          "handle": "caregiving_choice_vs_obligation",
          "type": "scale",
          "question": "To what extent does your caregiving feel like a choice you’ve made versus an obligation you can’t escape?",
          "maxScore": 10,
          "weight": 2,
          "answers": [
            {
              "label": "Entirely an obligation",
              "value": "0",
              "score": 0
            },
            {
              "label": "Entirely my choice",
              "value": "10",
              "score": 10
            }
          ]
        },
        {
          "handle": "quality_relationship_recipient",
          "type": "scale",
          "question": "How would you rate the quality of your relationship with the person you care for, separate from the caregiving role?",
          "maxScore": 10,
          "weight": 3,
          "answers": [
            {
              "label": "Very poor",
              "value": "0",
              "score": 0
            },
            {
              "label": "Excellent",
              "value": "10",
              "score": 10
            }
          ]
        },

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